Wednesday, May 4, 2011

The Lyme Wars: Part 2/2

We're concluding our interview with author Brandilyn Collins. Today, we focus on healing, what medical professionals can do to improve the care for those affected by chronic illness and what's next on Brandilyn's writing schedule. Remember, leave a comment this month on this blog and be eligible to win a free copy of her novel and another special surprise. Winner announced June 1, 2011.

Jordyn: You’ve been open about God healing you during your first Lyme infection. Did your feelings/attitude toward God change when you were re-infected? Are some of these attitudes reflected in Janessa’s attitude toward God as displayed in the novel?

Brandilyn: When I was reinfected with Lyme in 2009, I couldn’t believe it! I gave God a hard talking-to. What are you doing? We’ve been here, done this. And aren’t you worried about your reputation—so many people know you cured me once? What if they doubt you now? Well first, God informed me that He’d been dealing with the reputation thing since He brought the Israelites out of Egypt, so thank you very much, but He had that under control. Second, I can see now in hindsight that if I hadn’t experienced round number two of Lyme, I wouldn’t have written Over the Edge. As it turned out, six months of antibiotics cured me of that round.

Regarding Janessa, her spiritual journey is similar to mine. When I had Lyme the first time, I learned how to pray the psalms, both as petition and in praise—whether I felt like praising God or not. (Most of the time I didn’t.) It was a wonderful lesson that has changed me to this day.

Jordyn: Any words of wisdom for doctors/nurses in dealing with patients who have chronic pain/illness?

Brandilyn: Please, please don’t tell them it’s “all in their head” or some form thereof. Just because you can’t diagnose an illness—that doesn’t mean the patient simply wants attention or is a hypochondriac. It’s bad enough facing chronic illness. Worse still to be invalidated by the medical community. And please—educate yourself about Lyme. Admittedly, this is hard to do, because typical education would be in the form of reading published articles in esteemed medical journals. Unfortunately these articles are based on the old, wrong assumptions about Lyme (or the authors simply ignore other research altogether). Google “lyme wars” to start online research. And—I have to get in that plug—read Over the Edge. It will alert you to the symptoms and issues involved in the Lyme wars—and how those wars came about.

Secondly, I want to talk to you doctors/nurses who do know about Lyme but are afraid to diagnose it. I understand your dilemma. I understand you don’t want to get into a battle between treating a patient long-term as he or she needs and your medical board. The political climate for you regarding Lyme is very bad. But please don’t send that patient away, saying, “I don’t know what’s wrong with you.” At least admit to the patient that he may have Lyme and refer him to an organization that can help find a Lyme doctor. (Googling “find a Lyme literate doctor” is easy.) Leaving a possible Lyme patient completely in the dark opens him up to extended, further debilitating disease—if he does indeed have Lyme. I’ve seen this happen. I’ve seen Lyme patients lose all quality of life and become bedridden because their doctors didn’t want to admit Lyme, even when those doctors recognized the signs. I’ve even seen doctors refuse to test for Lyme when the patient requested it.

Jordyn: Any final thoughts? What’s next on your writing schedule?

Brandilyn: I’ve already turned in a book written after Over the Edge—another Seatbelt Suspense® titled Gone to Ground. (Serial killings in small-town Mississippi, in which three women know who the killer is and independent of each other, determine to bring him down—but they each suspect a different man.) I’m now writing the novel after that, titled Double Blind—about a brain chip clinical trial gone awry. As May 2011 rolls around I’ll be touring for Over the Edge. Currently planned stops/media appearances are in the areas of Dallas, Milwaukee, Minneapolis, and Chicago. Please check the Appearances page on my web site for further details. I also have a Lyme page on my site for further information on the disease and the “Lyme wars.”

Good health and blessings to all. ~ Brandilyn

Thank you so much Brandilyn for your time. Blessings to you in your writing and to the success of Over the Edge.

Even in writing fiction, it's a must to be factual for the story to ring true. Brandilyn also started a web-site for Lyme patients to discuss their experiences as well as some additional education regarding Lyme disease. These are great resources for research. You can find those by following these links:



  1. Jordyn: Thanks for setting up this interview up with Brandilyn, and congrats on your recent news about your own soon-to-be-published novel.

    Brandilyn: Wish you well on your most recent novel, Over The Edge. You really write from experience. Saw a Royal Pains episode a few months ago with a patient finally diagnosed with Lyme Disease. The show raised some of the same issues that patients confront when trying to get diagnosed properly. I thought of you as I watched. Keep spreading the word. May God continue to protect you from L.D. You have too many more great books to write.

  2. Brandilyn – thank you for the two great posts this week – very informative and a terrific reminder that Lyme’s patients aren’t alone and recovery is possible.

    It’s suspected that my 14-year-old son is still battling Lyme’s after years of symptoms – he never tested positive, so Lyme’s is just a guess on diagnosis. I went into more detail on my post today in response to Kristen’s post.

    What a blessing that you had a positive Lyme’s test to work from in order to receive a firm diagnosis and thus a solid treatment plan. As you know, it’s common to have Lyme’s and test negative. Since I’m in the medical field (I’m an EMT), a MD agreed to help my son – this orthopedist trusts me as a fellow medical professional and was willing to do whatever it took to help my son. I don’t think this MD would’ve listened to me as a mom, so I’m thankful for my EMT credentials. I’m also thankful that my son’s illness and my husband’s cancer led me to write inspirational. God works in amazing ways – everything always works out for the best, even though we don’t see it at that time.

    I’m so relieved you’re recovered from both your infections with Lyme’s. What a true blessing. Best of luck to you in your continued success in writing. I can’t wait to buy and read Over the Edge.

    Blessings to you,

  3. Mark,

    Thanks so much for stopping by. How is your book doing?


    Wow! You have been through a lot. I pray for a calm road for you to be on.